Tag Archives: Stigma

Elisa Lam – The Paradox of Discussion without Exploitation

By now, most people are aware of the tragic death of Elisa Lam. There’s a new docuseries about it, plus news stories, reports, and a near infinite number of conspiracy theories – surely she was murdered, the hotel staff were involved, LAPD covered it up, there’s a curse on the hotel, a man who wasn’t even in the country at the time but looked “different” must have done it, she was drugged, or otherwise compromised. (I will not link to the video.)

Ms Lam died in February 2013, the video came out soon after. While so many people were looking for a reason, trying to make a horrible event even worse, ruining an innocent man’s life because he was an artist they didn’t understand, while they watched the video and couldn’t make sense of it at all, my heart ached. I watched the screen, her behavior, the inexplicable movements and seeming paranoia, and said “She’s probably bipolar, and she’s having a psychotic break.” And it turns out, that’s exactly what happened. I knew this before I knew she was bipolar-1. I knew this before I learned she had a history of these breaks. I knew this because I am also bipolar-1 and I also had a psychotic break years ago. My heart broke for her and what she went through. This young lady so full of promise, taken so soon. My heart broke because I knew instantly what was happening, I’m certain others like me did too.

When it was revealed that she was suffering with mental illness late in the documentary, the keyboard warriors conspiracy theory community said, “Oh no, that doesn’t happen, she was carried to the water tower or killed elsewhere or sacrificed or…but that’s not what mental illness does!”

These bloggers had no idea about the illness, so I want to be clear; this is, in fact, what bipolar disorder can do to a person. If you want to know what bipolar-1 can do, ask someone with bipolar-1!

I’m not going to rehash the entire documentary, you can watch it if you want. But while you get sucked into the ridiculous, breathless theories up to and including Satanic involvement, just remember that she was not that video, those last images that people poured over frame by frame, achingly hopeful to find something that wasn’t there. So wrapped up in their own glory that they turned this young lady’s tragedy into a tool for internet fame. And in so doing, caused harm to the understanding of mental illness, potentially hurting people with bipolar-1, minimizing what this disease can do to a person.

Elisa Lam was a 21 year old woman, a human with a family, hopes, dreams, fears, and doubt. She was a thoughtful writer who may have gone on to great things, or may have gone into a different field, we’ll never know. Her life was cut short and what she may have been is unknowable.

That is the tragedy. That is the headline. This woman’s life meant infinitely more than a two-minute video and wide-eyed gossip. It is disrespectful to her and to her family to focus on this, especially now that the “mystery” is solved.

But here’s the thing; there was no mystery. There was no whodunit. The lynch mob never should have gotten where they did. People should not have worked up to such a froth that they found their enemy in an artist who expresses his vision in a way that they have never seen in their worlds. Even after being presented with empirical evidence of his innocence, they still made him a scapegoat. He nearly killed himself because of the harassment, the death threats, the attacks on his art. He does not look sinister to me. I’ve known artists like him. I don’t know this man, I don’t know what kind of things he’s done in his life, but this is not one of them. I feel for him. These people nearly destroyed him, and not one person in that group of accusers has apologized. Pablo Vergara, I doubt you’ll read this, but if you do, I hope you are doing better. I hope you are making music again. I’m so sorry the lynch mob did this to you.

This is what happens, isn’t it? Are you old enough to remember the “Satanic Panic” bullshit in the ‘80s? I was in high school, I remember it well. People’s lives were torn apart, innocent people were sent to prison. Based upon what? Recovered memories, hearsay, rumors, and gossip. Targeting people that looked “weird,” people who said something “suspicious.” It was Salem without the hangings, or pressing in one case. It was another witch hunt by “adults” who wanted some drama in their lives, and let fear turn them into the monsters they claimed to chase. I learned the power of a mindless mob.

And here we are again.

This promising young lady’s life was distilled down to her death and the titillating fun these people could have with it. It makes me sick, it makes me angry, but most of all it makes me sad.

She deserves better.

I just learned she kept a blog. She told us who she was in her own voice. She was reflected in her family, in her friends, in the people she touched. She was a fully-rounded person with a mental illness and she did what she could, as we all do. I related to her with all my heart. I saw what was happening from the first viewing. I’ve been there, as have so many of us. I wish someone could have intervened. I wish her life was the focus, not the details of her death. I wish this could bring a discussion about what bipolar disorder is and what it can do to a person. I wish we would stop shouting “bipolar!” whenever there is a shooting, feeding the flames of stigma.

I won’t exploit her death but this conversation is important. I want to talk about those issues and raise awareness of mental illness. I also need to rant for a moment because issues around conspiracy theories and the damage they cause are important. Yes, I’m pissed. I took this personally, watching this young woman be the subject of gossip and wide-eyed “OMG!” conversations. Elisa Lam was a person doing the best she could. Please let this woman rest. What happened is clear and heartbreaking.

Finally to anyone reading who has a mental illness, please take care of yourself, be kind to yourself, and find the help you need to learn to live with your illness. You are not broken, you are not defective, you have a medical illness no different than any other.

If you need help, or know someone who does, please use one of the numbers below. There is no shame in needing help, no shame in having a mental illness. You can learn about your disease and how to manage it.

National Helpline

SAMHSA’s National Helpline is a free, confidential, 24/7, 365-day-a-year treatment referral and information service (in English and Spanish) for individuals and families facing mental and/or substance use disorders.
https://www.samhsa.gov/find-help/national-helpline

National Suicide Prevention Hotline

We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals.

1-800-273-8255

Own Your Truth to Help Others

It’s normal for me to be extremely honest about what’s happening in my life, that’s how Nightmares and Laughter is designed. But my life is only a framing device for the real point of this page. I started it specifically to try and help others like me. In other words, I am the scene, you are the story. Since I was in a really bad place the last week, I’m hoping it can be useful.

reach out 3

What’s happening is not going to stop anytime soon, (the building is being sold, vulture lawyers and buyers will try to bully all of us, and may try to kick us all out.) I cannot stand this sort of unknown, the constant fear, I don’t feel safe, will we lose our home, how badly will they treat us, how ugly will this get? I know I will see the other side, but right now, I’m scared, and I don’t like that. It is just the cherry on the top of a number of other sorts of stresses so it just broke me. Chris was on a much-deserved vacation, so getting a letter with several lawyer’s names listed and vaguely threatening wording was too much. I fell apart for like a day and a half. What I’m describing is human, it’s normal, it’s perfectly ok. We all break sometimes, there’s no shame in that. I’m saying this to you, as well as to remind and convince myself.

But we had a tenant meeting a neighbor organized, (the lawyers do not want people talking to each other, they want us scared and unaware of our rights,) and it very much helped.

During the meeting, we all said what our biggest concerns were. Mostly they were similar; Chris and I would most definitely have to leave San Francisco, the city we love, and possibly the Bay Area. This infuriates me as a 3rd generation NorCal native, I can’t even afford my hometown, but I digress.

One of my dear neighbors is having a very hard time. As she was speaking my heart ached both because really, she has it worse by far, and also because I want to help. That’s my mission on this page, and that is what I want to do in real life.

Some of you know that Belle Chapin is a pseudonym. I started it that way because I was nervous about self-revealing, about what that could mean to my future, especially as I look for work, what it could mean in general due to stigma. I leave it that way as sort of a firewall I guess, between trolls and my identity, but I’ve mentioned it several times, and of course, posted photos of myself, so that’s sorted.

reach out 2
Yes, I love Halloween, but this picture was taken in June. That’s Ermastus.

Now, I’ve done so on this blog. I used my real name on my book. The circle of people in real life who know is getting larger. But I didn’t know quite how comfortable I was with it until yesterday when that lovely woman was speaking, and I told her without thinking that I have bipolar disorder and I understand mental illness so please contact me if you need to.

As soon as that left my mouth, I pulled back inside. My inner monologue went straight to “Oh shit! I said that out loud, in front of humans.” I tried to get a grip on what this meant, what I had done. The toothpaste will never go back in the tube, so whatever someone brings to the table is how they will see me from now on. I don’t know many of these people at all, so unlike telling friends they will not be seeing it from a place of affection, but just strangers who live in my building. I have no control over what they will think of me or take from this. But the words simply left my mouth with zero thought other than explaining common issues that could be helpful. If I had told someone trying to get sober than I’ve been there, it would be the same. And what if I had? Would that feel different?

Actually yes, it would. I would have been more comfortable having announced, so to speak, that I’m an alcoholic, than that I have a mental illness. I think that’s worth looking at for all of us who fear stigma.

I mentioned I’m looking for a job. It’s common now for there to be a spot to enter a website. I’ve thought about linking to this blog. I’m proud of it, I’m happy with what I set out to do, I’m a decent writer, and I hope I have helped some people. But so far I haven’t, not once. Why not? Why shouldn’t I?

Because I’m afraid, is the short answer. Still, after all this time, I can’t bring myself to do it. And yet yesterday, in the middle of a room of people, many of whom are strangers, I reflexively blurted it out. It simply felt like the right thing to do to offer help.

I am the scene, you are the story. I set the plot, and you, my readers, who are largely strangers, take whatever you need, want, or not, and tell your story. That’s what I want, that’s what Nightmares and Laughter is supposed to be. But I can’t help a larger number if I hide away afraid. If I can’t bring this mission into my real life, how can I be of service? What if the person I’m listening to is too afraid to talk about it, and my revealing to them is a comfort, they’re not alone, I’m there for them. That’s the mission of Nightmares and Laughter. How can I fulfill that if I am afraid?

Stating it head high, matter of fact, unflinching, could illustrate that there is no shame in it, it’s nothing to hide, nothing to hold quaking in your heart. If I can’t do that, I am not true to myself and no help to anyone else.

I feel better now having found out our rights, and what exactly is going on with the building’s purchase. I feel better knowing we are not in immediate danger. Getting out of my own head and reaching out to someone else helps. We are not alone. Someone cares. Having the sword above our heads is a dreadful place for me, but I’m back on my feet. But last week I was not. I started an article in the midst of it, but it will wait until I have a clearer head to edit.

I leave you with this advice, when you are depressed, or in whatever state you find yourself, watch that internal monolog. Mine gets really ugly and vicious toward myself. Does yours? Someone said to me once, “If a friend came and told you they were feeling those things, what would you say to them? Would you tell them they’re stupid and worthless?” No, of course not. What would you say to them? What would you do? Nurture? Affirm? Would you talk softly to them? You are worth all of that and more.

be kind to your self elephant

 
Here are two resources for you, if you need them.

National Helpline

SAMHSA’s National Helpline is a free, confidential, 24/7, 365-day-a-year treatment referral and information service (in English and Spanish) for individuals and families facing mental and/or substance use disorders.
https://www.samhsa.gov/find-help/national-helpline

National Suicide Prevention Hotline

We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals.
1-800-273-8255

Home

Millennials, GenZ, and Stigma

I just saw this on Facebook.

kids stigma

 

Leaving aside for a moment that, like everything else, it jumps from Boomers to Millennials and GenZ, skipping over my entire generation like we were the embarrassing child you pop into a backroom when company comes over, where we sit and sulk and listen to dark music and smoke Cloves and talk about how everyone else are conformists and we don’t need their approval, and…ah, sorry.  Got lost in thought.

Anyway, my main point here is the message, not the fact that GenX is just non-existent as if we had no effect on the zeitgeist at all, as if Clerks wasn’t a movie and grunge wasn’t a thing or whatever.

kids stigma 4
Oh, come on!

OK, that’s out of my system.

I like the message here, that younger people are more accepting of therapy and mental health issues.  That it’s being spoken about more openly, that’s it’s no longer so taboo.  I decided to look into it because that would be amazing.  And since the Millennials and GenZ now outnumber the Boomers, this is a huge wave.

This is a very hopeful article I found on the National Alliance on Mental Illness – NAMI’s site. Millennials And Mental Health

This paragraph in particular really hit me:

“Mental health conditions run in our family. My mom had depression. My youngest daughter and I have recovered from panic disorder. Mackenzie was aware of our family history, and maybe that made it easier for her to talk about her symptoms. But I think the main reason she was encouraged to get professional help was that she heard her friends and coworkers openly discuss their mental health issues. Mackenzie didn’t feel ashamed or alone.”

I cannot imagine discussing my illness at work.  The idea of anyone “finding out” has caused me crippling fear all my life, caused me to use a pseudonym on this blog, almost took away my name so that I could hide.  It caused me to fear and hate the thing in me.  The idea of coming into work and saying, “Sorry I was out yesterday, I had a serious bipolar episode, and I was in the hospital.  Hey, can I have a donut?” is still just inconceivable to me.

But if the younger generations are getting a handle on it, (Millennials run from 1981-1996, please stop calling them kids) that could be a huge turning point for all of us, even GenX who are totally a thing and I’m sitting right here typing.  We could all benefit. This is not just a question of openness, of comfort, it’s potentially a matter of life and death.  If mental illness is so hidden and stigmatized, if people feel so shameful about it, it may go undiagnosed and untreated.  No one should have to live with that burden, and if it’s starting to become more accepted, this is something to be celebrated.

While writing this, though, I found an alarming statistic.  I found several articles that all came down to the same general conclusion; Millennials and GenZ are reporting mental health concerns at a higher rate than before, but self-harm/suicide ideation/and suicide is higher as well.  I found several articles with possible reasons for this, but I think this one covers them.  Gen Z more likely to report mental health concerns

But there’s a paragraph that brings us back to my original point.

“At the same time, the high percentage of Gen Z reporting fair or poor mental health could be an indicator that they are more aware of and accepting of mental health issues. Their openness to mental health topics represents an opportunity to start discussions about managing their stress, no matter the cause.”

They are more stressed for a variety of reasons, and they are more likely to report it and talk about it openly.  So why are they also hurting themselves more?  Pain does not disappear solely because it is talked about, there are still root causes for it.  The younger generations are getting a handle on openness and throwing out shame, but are we taking this seriously?  Are we giving them the help and support they need?  I can identify my broken arm, but what if no one will fix it?  I didn’t find anything specific to those questions, so I’ll leave them as questions. Hopefully, someone with more knowledge than I have will chime in.

What I take from all of this is that while there are alarming things, there is also room for celebration.  If stigma is truly being chipped away, if every new generation is more open about mental illness and that it is a medical issue like any other, then that is something I didn’t expect to see in my lifetime.

So many of the problems that are so specific to Millennials and GenZ – not enough real interaction, comparing themselves to the happy smiling lives on Facebook or Instagram  – are attributed to social media; I think the changes in stigma can be traced to that too.  The concept of privacy is changing, even on this blog I’ve posted pictures of myself and my private life that sometimes give me night-terrors, so the people who’ve grown up knowing nothing else, wouldn’t their concept of privacy change?  With so many celebrities self-revealing and talking about what it is and is not, wouldn’t that have an effect on the thinking, on the world view?  How can that be anything but good?

I have more questions than answers here because I’m not a doctor and I don’t want to try to simplify such complex issues.  But really, it does make me hopeful.

It took me 47 years to slowly begin to reveal.  I had to work through exhaustion, pain, crippling fear.  I hid my legitimate illness because I was afraid of not getting jobs, being fired from jobs, being mocked, feared, treated with eye-rolling dismissal, even now, as I look for work, I can’t help but feel these familiar pangs.  So I am hopeful that the younger generations can look back at that, at stigma, at fear, and furrow their brows and say “What was the big deal?”

I would also like to point out the obvious here – all of this sprung from a meme I saw on Facebook.  That just amuses me.

I’m including the list of resources for you since this article talked about some painful things.  Please do call one if you need to.  Remember, it’s a legitimate illness and stigma can fuck right off.

 

National Helpline

SAMHSA’s National Helpline is a free, confidential, 24/7, 365-day-a-year treatment referral and information service (in English and Spanish) for individuals and families facing mental and/or substance use disorders.
https://www.samhsa.gov/find-help/national-helpline

 

Rape, Abuse & Incest National Network

Free, confidential, 24/7 support.

https://www.rainn.org/

 

National Suicide Prevention Hotline

We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals.

1-800-273-8255

https://suicidepreventionlifeline.org/

 

PFLAG Support Hotlines

The hotlines listed below provide services to callers across the country. If you’re looking for a local support network, also contact one of PFLAG’s more than 400 chapters in the United States.

https://pflag.org/hotlines